Understanding Epilepsy
A guide for parents, caregivers, and anyone who wants to learn about epilepsy and how to help someone during a seizure.
Contents
π§ What is Epilepsy?
Epilepsy is a neurological condition that affects the brain's electrical activity. It's characterized by recurrent, unprovoked seizures caused by sudden bursts of abnormal electrical signals in the brain.
π‘ Key Points
Epilepsy is not contagious and is not a mental illness. It's a medical condition that can affect anyone at any age. Many people with epilepsy live full, active lives with proper treatment and management.
What Causes Epilepsy?
Epilepsy can have many causes, though in about half of cases, the cause is unknown. Known causes include:
- Genetic factors β Some types of epilepsy run in families
- Brain injury β From accidents, strokes, or lack of oxygen
- Developmental disorders β Such as autism or certain genetic conditions
- Infections β Like meningitis, encephalitis, or brain abscess
- Brain tumors or structural abnormalities
- Prenatal factors β Brain damage before birth
β‘ Types of Seizures
Seizures are classified into two main categories based on where in the brain they begin: focal (partial) seizures and generalized seizures.
Focal (Partial) Seizures
These seizures start in one specific area of the brain. The person may or may not lose awareness.
Focal Aware Seizure
The person remains conscious but may experience unusual feelings, sensations, or involuntary movements in one part of the body.
Usually under 2 minutesFocal Impaired Awareness
Consciousness is affected. The person may stare blankly, make repetitive movements (lip smacking, hand rubbing), or seem confused.
30 seconds to 2 minutesFocal to Bilateral Tonic-Clonic
Starts in one area but spreads to both sides of the brain, becoming a full convulsive seizure.
1 to 3 minutesGeneralized Seizures
These seizures involve both sides of the brain from the start and usually cause loss of consciousness.
Absence Seizure
Brief "blanking out" episodes. The person stares into space and may have subtle body movements like eye blinking. Common in children.
Usually under 10 secondsTonic-Clonic (Grand Mal)
The most recognized type. Involves stiffening (tonic phase) followed by rhythmic jerking (clonic phase). Loss of consciousness occurs.
1 to 3 minutesTonic Seizure
Muscles suddenly stiffen. If standing, the person may fall. Usually affects muscles in the back, arms, and legs.
Under 20 secondsAtonic Seizure (Drop Attack)
Sudden loss of muscle tone causes the person to go limp and fall. High risk of injury from falling.
Under 15 secondsClonic Seizure
Repeated rhythmic jerking movements, usually affecting the neck, face, and arms on both sides of the body.
VariableMyoclonic Seizure
Brief, shock-like jerks of a muscle or group of muscles. Usually affects the upper body, arms, and legs.
1 to 2 secondsπ Recognizing a Seizure
Seizures don't always look like dramatic convulsions. Learning to recognize different signs can help you respond appropriately.
Common Signs to Watch For
- Sudden falling or loss of balance
- Stiffening of the body or limbs
- Rhythmic jerking movements
- Staring blankly or appearing confused
- Unresponsiveness to questions or sounds
- Repetitive movements like lip smacking, chewing, or hand movements
- Sudden mood changes or unusual behavior
- Loss of bladder or bowel control
- Changes in breathing or skin color (may turn blue)
β οΈ Warning Signs (Auras)
Some people experience warning signs before a seizure, called an "aura." These may include:
- Strange smells or tastes
- Visual disturbances (flashing lights, spots)
- Feeling of dΓ©jΓ vu
- Sudden fear or anxiety
- Tingling sensations
- Nausea or stomach rising feeling
What a Seizure Might Look Like
Every seizure can be different, even in the same person. Here's what you might observe:
Before the Seizure
The person may cry out, make a sound, or become very still. They might report feeling strange or "off."
During the Seizure
Depending on the type, you may see staring, confusion, muscle stiffening, jerking movements, or the person may simply seem "zoned out."
After the Seizure (Postictal Phase)
The person may be confused, tired, have a headache, or feel muscle soreness. Recovery can take minutes to hours. They may not remember what happened.
π€ What to Do During a Seizure
Knowing how to respond can help keep the person safe and reduce your own anxiety. Remember: stay calm β most seizures end on their own within a few minutes.
First Aid Steps
- Stay calm and stay with them Time the seizure. Note when it starts β this information is important for medical providers.
- Keep them safe Move hard or sharp objects away. If they're standing or sitting, gently guide them to the floor if possible.
- Cushion their head Place something soft under their head to prevent injury. A folded jacket or sweater works well.
- Turn them on their side Once any jerking stops, gently turn them onto their side (recovery position). This helps keep the airway clear.
- Stay until they're fully alert The person may be confused when they wake up. Speak calmly and reassure them. Stay with them until they've fully recovered.
β DO
- Time the seizure
- Clear the area of hazards
- Cushion their head
- Loosen tight clothing around the neck
- Turn them on their side after jerking stops
- Stay with them until they're alert
- Speak calmly and reassuringly
- Note what happened (for their records)
β DON'T
- Put anything in their mouth
- Hold them down or restrain them
- Try to stop the movements
- Give them food, water, or medication
- Leave them alone
- Panic or shout
- Attempt CPR (unless they stop breathing after the seizure)
π‘ Myth Buster
You cannot swallow your tongue during a seizure. Never put anything in a person's mouth β this can cause injury to their teeth, jaw, or your fingers. The best thing you can do is keep them safe and let the seizure run its course.
π When to Call Emergency Services
Most seizures don't require emergency medical attention. However, there are situations when you should call for help immediately.
π¨ Call Emergency Services If:
- The seizure lasts longer than 5 minutes
- The person doesn't regain consciousness after the seizure
- A second seizure follows shortly after the first
- The person is injured during the seizure
- It's the person's first seizure (that you know of)
- The person is pregnant, has diabetes, or has another medical condition
- The seizure happens in water
- The person has difficulty breathing after the seizure
- You're unsure if it's a seizure or something else
π΄ Status Epilepticus
A seizure lasting more than 5 minutes is a medical emergency called status epilepticus. This requires immediate medical attention as it can cause brain damage or be life-threatening. Call emergency services immediately.
π Living with Epilepsy
With proper treatment and management, most people with epilepsy can live full, active lives. Here are some key points about managing epilepsy:
Treatment Options
- Medication β Anti-seizure medications (ASMs) are the most common treatment and work for about 70% of people
- Surgery β May be an option when seizures start in a specific area of the brain
- Dietary therapy β The ketogenic diet and other dietary approaches can help some people
- Devices β Vagus nerve stimulation (VNS) and other devices may help reduce seizures
Common Seizure Triggers
Many people can identify specific triggers that increase their likelihood of having a seizure:
- Missed medication β The most common trigger
- Lack of sleep or irregular sleep patterns
- Stress and emotional upset
- Alcohol or drug use
- Flashing lights (photosensitivity) β affects about 3% of people with epilepsy
- Hormonal changes (menstrual cycle)
- Illness or fever
- Skipping meals or dehydration
π Tips for Support
If someone you care about has epilepsy:
- Learn their seizure first aid plan
- Know their medications and emergency contacts
- Be patient during and after seizures
- Encourage them to track their seizures (apps like Epilog can help!)
- Treat them normally β epilepsy doesn't define who they are
Track Seizures with Epilog
Epilog helps you log seizures, track medications, and share reports with healthcare providers β all in a simple, accessible app.
Download Epilog